Juvenile Epilepsy

DEL MAR HIGHLANDS TOWN CENTER GIVES LAKESIDE CHILD THE GIFT OF JOY FOR HOLIDAY SEASON

Center gives family huge holiday sea star after it sparked joy and smiles from a 5-year-old girl who suffers from CDKL5 deficiency disorder. The 6+ foot holiday sea star was delivered to Brooklynn Jarvis yesterday, Dec. 19.
 
Source: Del Mar Highlights Town Center
 
December 20, 2020 (Lakeside) – Del Mar Highlands Town Center is showing the spirit of the season with its surprise gift to a local customer who had a joyful experience on property in December.
 
Del Mar Highlands Town Center’s annual holiday “’Tis the Sea Sun” display features larger than life décor, from a towering 36-foot Christmas tree made of 44 surfboards to bright orange holiday sea stars adorning Santa’s red hat. When the Jarvis family visited Del Mar Highlands Town Center in early December, little did they know they would get the holiday spirit in action.
 
Their daughter, Brooklynn Jarvis (age 5) suffers from CDKL5 deficiency disorder. She has had seizures since she was two months old and suffers with severe developmental problems. She loves bright colors and lights so when the family came upon the "tis the sea sun” themed holiday decor created by Shine Illumination, Brooklynn beamed with a beautiful smile. Her family was so excited they shared pictures of this incredible moment for their daughter at the Center with support groups on Facebook.
 

THE NEW FACE OF MEDICAL CANNABIS

 

By Grey Feathers

June 1, 2014 (San Diego) -- An 18 month old girl with a form of Juvenile Epilepsy died in New Jersey, Chris Matthews reported on MSNBC’s Hardball.   The girl suffered as many as 90 seizures every day.  Children to young adults diagnosed with this disease are destined to suffering with little or no chance of surviving.  Immediately parents are looking to alternative medicines and treatments to save their children.   The latest treatments are effective for only about half of the one million or so people who have uncontrolled seizures.  The side effects of these artificial drugs are almost as bad as the disease says Christopher Dimascio, “I feel like I’m moving through Jello.  I hate the feeling.”